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Charity Seeks to Find a Cure for Angelman Syndrome

Approximately 1 in 15,000 children born are affected with a neuro-genetic disorder known as Angelman Syndrome. This condition leaves children, often referred to as angels, unable to speak and in need of round the clock care. Seizure disorders that are sometimes hard to control are also extremely common among those with Angelman Syndrome.

Currently there is no cure for Angelman Syndrome. That is where the charity FAST (Foundation for Angelman Syndrome Theraputics) comes in to play. FAST focuses on fundraising and collecting online donations in order to fund clinical trials that will result in a cure for individuals with Angelman Syndrome.

With the help of celebrities like Colin Farrell, whose son James has Angelman Syndrome, the charity has raised enough money to begin its first clinical trial. This trial selected 24 angels for its first phase, and is currently being conducted in Tampa, Florida.

FAST is continuing to encourage individuals to spread awareness about Angelman Syndrome, and to continue participating in fundraising efforts that will ultimately fund additional trials. The charity will not cease until all of the angels are able to speak, walk, function, and remain free of seizures.

The Foundation for Angelman Syndrome Theraputics knows that a cure is possible. Dr. Edwin Weeber was actually able to cure the condition in a mouse that had Angelman Syndrome. It is this hope that keeps the charity going, and has led to the increased momentum in fundraising and online donations.

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